Advertisement
SYMPOSIUM ARTICLE| Volume 351, ISSUE 4, P400-406, April 2016

Contested Ownership of Disease and Ambulatory-Sensitive Emergency Department Visits for Type 2 Diabetes

  • Author Footnotes
    1 These authors contributed equally to this work.
    Jennifer E. Shearer
    Footnotes
    1 These authors contributed equally to this work.
    Affiliations
    College of Nursing, Charleston Southern University, Charleston, South Carolina
    Search for articles by this author
  • Author Footnotes
    1 These authors contributed equally to this work.
    Carolyn H. Jenkins
    Correspondence
    Correspondence: Carolyn H. Jenkins, College of Nursing, Medical University of South Carolina, 99 Jonathan Lucas Street, MSC 160, Charleston, SC 29425.
    Footnotes
    1 These authors contributed equally to this work.
    Affiliations
    College of Nursing, Medical University of South Carolina, Charleston, South Carolina
    Search for articles by this author
  • Author Footnotes
    1 These authors contributed equally to this work.
    Gayenell S. Magwood
    Footnotes
    1 These authors contributed equally to this work.
    Affiliations
    College of Nursing, Medical University of South Carolina, Charleston, South Carolina
    Search for articles by this author
  • Author Footnotes
    1 These authors contributed equally to this work.
    Charlene A. Pope
    Footnotes
    1 These authors contributed equally to this work.
    Affiliations
    College of Nursing, Medical University of South Carolina, Charleston, South Carolina

    Ralph H. Johnson VA Medical Center, Charleston, South Carolina
    Search for articles by this author
  • Author Footnotes
    1 These authors contributed equally to this work.

      Abstract

      Background

      Approximately 21 million persons have diabetes and account for 11.9% of all emergency department (ED) visits for a total cost of $14.1 billion. Nonemergent visits for ambulatory-sensitive conditions that could be managed by the primary care provider make up almost one-third of the ED visits. African Americans comprise approximately 30% of South Carolina׳s population but make up approximately 50% of the ED visits for diabetes. The purpose of the research was to explore the experiences of 20 African-American adults with diabetes with ambulatory-sensitive ED use.

      Research Design and Methods

      The research design for this study is grounded theory with dimensional analysis methods. Following ethics approval and informed consent, interviews were conducted, recorded and transcribed verbatim, and themes were analyzed to form the explanatory framework or matrix for ED use. The framework of context, conditions, processes and consequences provides a key for understanding the themes of the story embedded in the descriptive narratives.

      Results

      The contested ownership of diabetes was the overarching perspective—“doing what I got to do,” “it׳s always on mind… wishing not to be a diabetic” and “it׳s a constant burden.” And handling diabetes involved taking decisions “into your hands.” The context of perceived urgency of symptoms included all the reasons that precipitated ED visit—personal experience, primary care access and services and social network support for decisions-influenced ownership of these decisions.

      Key Indexing Terms

      To read this article in full you will need to make a payment

      Purchase one-time access:

      Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online access
      One-time access price info
      • For academic or personal research use, select 'Academic and Personal'
      • For corporate R&D use, select 'Corporate R&D Professionals'

      Subscribe:

      Subscribe to The American Journal of the Medical Sciences
      Already a print subscriber? Claim online access
      Already an online subscriber? Sign in
      Institutional Access: Sign in to ScienceDirect

      References

      1. Centers for Disease Control (CDC). National Diabetes Statistical Report. 2014. Available from: http://www.cdc.gov/diabetes/pubs/statsreport14/national-diabetes-report-web.pdf

      2. American Diabetes Association (ADA) (published online ahead of print March 6, 2013). Economic costs of diabetes in the U.S. Diabetes Care. 2013. Available from: http://care.diabetesjournals.org/content/early/2013/03/05/dc12-2625.full.pdf.

        • Stern Z.
        • Calderon-Magalit R.
        • Mazar M.
        • et al.
        Emergency room visit: a red-flag indicator for poor diabetes care.
        Diabetes Med. 2009; 26: 1105-1111
        • Galarraga J.E.
        • Pines J.M.
        Costs of ED episodes of care in the United States.
        Am J Emerg Med. 2015; https://doi.org/10.1016/j.ajem.2015.06.001
      3. DeLia D, Cantor JC. Emergency department utilization and capacity (Research Synthesis Report No. 17). Retrieved from Robert Wood Johnson Foundation website: http://www.rwjf.org/content/dam/farm/reports/reports/2009/rwjf43565; 2009.

      4. South Carolina Department of Health and Environmental Control (SCDHEC). Burden of Diabetes in 2012 Report. Columbia, SC. 2013. Available from: http://www.scdhec.gov/administration/library/CR-010714.pdf.

      5. Morganti KG, Bauhoff S, Blanchard JC, et al. The evolving role of emergency departments in the United States. Rand Health. 2013. Available from: http://www.rand.org/pubs/research_reports/RR280.html.

        • Charmaz K.
        Constructing Grounded Theory. Sage, Thousand Oaks, CA2006
        • Schatzman L.
        Dimensional analysis: notes on an alternative approach to the grounding of theory in qualitative research.
        in: Maines D. Social Organization and Social Process: Essays in Honor of Anselm Strauss. Aldine De Gruyter, NY1991: 303-314
        • Kools S.
        • McCarthy M.
        • Durham R.
        • et al.
        Dimensional analysis: broadening the conception of grounded theory.
        Qual Health Res. 1996; 6: 312-330
        • McHale P.
        • Wood S.
        • Hughes K.
        • et al.
        Who uses emergency departments inappropriately and when: a national cross-sectional study using a monitoring system.
        BMC Med. 2013; 11: 258https://doi.org/10.1186/1741-7015-11-258
        • Honigman L.
        • Wiler J.
        • Rooks S.
        • et al.
        National study of non-urgent emergency department visits and associated resource utilization.
        Western J Emerg Med. 2013; 14: 609-616
        • Davis B.
        • Pope C.
        • Mason P.
        • et al.
        “It׳s a wild thing, waiting to get me”: stance analysis of agency in 20 interviews with Aftican Americans with diabetes following an emergency room visit.
        Diabetes Educ. 2011; 37: 409-418https://doi.org/10.1177/014572171140443
        • Charmaz K.
        ‘Discovering’ chronic illness: using grounded theory.
        Soc Sci Med. 1990; 30: 1161-1172
        • Glaser B.G.
        • Strauss A.L.
        The Discovery of Grounded Theory: Strategies for Qualitative Research. Aldine Publishing Company, Chicago1967
        • Gomersall T.
        • Madill A.
        • Summers L.K.M.
        A metasynthesis of the self-management of type 2 diabetes.
        Qual Health Res. 2011; 21: 853-871
      6. NVivo qualitative data analysis software. Burlington, MA: QSR International (Americas) Inc.Version 8, 2008.

        • Wagner E.H.
        • Austin B.T.
        • Von Korff M.
        Organizing care for patients with chronic illness.
        Milbank Q. 1996; 74: 511-544
        • Jenkins C.
        • Pope C.
        • Magwood G.
        • et al.
        Expanding the chronic care framework to improve diabetes management: the REACH case study.
        Prog Community Health Partners. 2010; 4: 65-79
        • Funnell M.M.
        • Anderson R.M.
        Empowerment and self-management of diabetes.
        Clin Diabetes. 2004; 22: 123-125
        • Skelly A.H.
        • Leeman J.
        • Carlson J.
        • et al.
        Conceptual model of symptom-focused diabetes care for African-Americans.
        J Nurs Scholarship. 2008; 40: 261-267
        • Jayne R.L.
        • Rankin S.H.
        Application of Leventhal׳s self-regulation model to Chinese immigrants with type 2 diabetes.
        J Nurs Scholarship. 2001; 33: 53-59
        • Karnilowicz W.
        Identity and psychological ownership in chronic illness and disease state.
        Eur J Cancer Care. 2010; 20: 276-282
        • Winkelman W.J.
        • Leonad K.J.
        • Rossos P.G.
        Patient-perceived usefulness of online electronic medical records: employing grounded theory in the development of information and communication technologies for use by patients living with chronic illness.
        J Am Med Inform Assoc. 2005; 12: 306-314
        • Koch T.
        • Jenkin P.
        • Kralik D.
        Chronic illness self-management: locating the ‘self’.
        J Adv Nurs. 2004; 48: 484-492
        • Delmar C.
        • Bøje T.
        • Dylmer D.
        • et al.
        Independence/dependence—a contradictory relationship? Life with a chronic illness.
        Scand J Caring Sci. 2006; 20: 261-268
        • Olshansky E.
        • Sacco D.
        • Fitzgerald K.
        • et al.
        Living with diabetes: normalizing the process of managing diabetes.
        Diabetes Educ. 2008; 4: 1004-1012
        • Paterson B.L.
        The shifting perspectives model of chronic illness.
        J Nurs Scholarship. 2001; 33: 21-26
        • Kralik D.
        • Koch T.
        • Price K.
        • et al.
        Chronic illness self-management: taking action to create order.
        J Clin Nurs. 2004; 13: 259-267
        • Tilden B.
        • Charman D.
        • Sharples J.
        • et al.
        Identity and adherence in a diabetes patient: transformations in psychotherapy.
        Qual Health Res. 2005; 15: 312-324
        • Utz S.W.
        • Steeves R.H.
        • Wenzel J.
        • et al.
        “Working hard with it” self-management of type 2 diabetes by rural African Americans.
        Fam Community Health. 2006; 29: 195-205
        • McKinlay J.
        • Piccolo R.
        • Marceau L.
        An additional cause of health care disparities: the variable clinical decisions of primary care doctors.
        J Eval Clin Pract. 2013; 19: 664-673https://doi.org/10.1111/jep.12015
        • Vaccaro J.A.
        • Huffman F.G.
        Reducing health disparities: medical advice received for minorities with diabetes.
        J Health Hum Res Adm. 2012; 34: 389-417
        • Paterson B.L.
        • Russell C.
        • Thorne S.
        Critical analysis of everyday self-care decision making in chronic illness.
        J Adv Nurs. 2001; 35: 335-341
        • Zoffmann V.
        • Kirkevold M.
        Life versus disease in difficult diabetes care: conflicting perspectives disempower patients and professionals in problem solving.
        Qual Health Res. 2005; 15: 750-765